Thursday, February 28, 2013

Seizure Free



We are so completely overjoyed at the moment.


It is so hard to put into words all of the emotions that we are feeling.


Just short of two years ago Ethan had his first seizure. That seizure turned out to be the first of thousands. Our life was turned upside down. You can read more about that here

In recent blog posts I had stated how frustrated the doctors were, and that they didn't know what else to try. Ethan has failed every drug he has tried. The ketogenic diet did seem to lesson the amount of seizures he was having everyday, but slowly the numbers went back up. Soon he was back up to having 20-30 drop seizures a day and absent seizures every few seconds. So we continued to pray. 

Then last week as were asking the Lord want to do, he brought a person to mind that was able to offer another perspective. She is a specialist with the keotgenic diet. She suggested adding fish oil, COQ10, and folinic acid to his diet. For those of you not familiar with the ketogenic diet let me just say that this is not as easy as it sounds. I had to search out the right brand of each supplement making sure there was no sugar or carbs in them. Then I have to get him to take them. Remember he can't have sugar, and he has never swallowed a pill, so how do you hide them? The form they come in is a gel cap, almost like a vitamin E. So I knew I wasn't going to be able to crush them. It was big undertaking. So when the supplements arrived in the mail we opened the bottle of the fish oil and gave him one. He proceeded to chew it up and ask for more. Ewww! Isaiah and Isabelle were laughing and of course Ethan loves attention so it worked out well. Everyday since then he chews them up and we all tell him how great he is for eating them. 

Just two days after starting the supplements we noticed a huge decrease in the number of seizures he was having. Then on Monday he only had one slight twitch. Tuesday was our first seizure free day in nearly two years. It was an amazing day!

Today however marks day number three of being seizure free!! We are praising the Lord for his faithfulness through all of this. He is so good. 

Here is a video clip that we took at the end of day on Tuesday, February 26th 2013. It was his first seizure free day. 

video


Thank you so much for praying! 

God has done a miracle! 

Please keep praying for him as we know it will take time for him to heal.

"Give thanks to the LORD, for he is good. 'His love endures forever.'"

Psalm  136:1





1 comment:

  1. Oh, how I'm hoping that it has continued! We are faithfully praying and believing that this is just the beginning. Blessings to you!

    ReplyDelete