We have good days with Ethan, (5-10) seizures. Then we will have horrible days, grand mals in the morning followed by lots of drops all day long. We have seen him fall down the stairs multiple times this month, crash into the pavement when he is playing outside, and hit furniture often. I would love to write that things are changing, but that is just not the case. If we can make it through a day with out any injuries that is a great day! We are thankful for the little things.
Lately the hardest thing that we are facing is not the seizures, believe it or not. :) The toughest part of the day is by far meal times. Ethan is refusing to eat. For all of you who have been with me when I am preparing his meals you know how time consuming it is. Then we have to sit with him and coax him to take a bite. We spend so many hours either in the kitchen, or at the table trying to get him to eat. Most parents know how hard it is to get a 3 year old to eat something that they don't like. More than likely it is just not going to happen! Well with Ethan the food is his medication, and he has to eat every bit in order for this diet to work. It is incredibly draining, but we so want him to stop seizing. Please be praying with us. We need him to eat.
He does have his happy moments through out the day. Here is a smiling moment:
Today was national epilepsy awareness day. So in honor of spreading the word about epilepsy we wore purple. (Purple is the color of Epilepsy.) Ethan put on his purple button, as he has a favorite shirt that he likes to wear. (Just about everyday.) :) He has so much in his life that he can not control, so to have control over his shirt choice is very important.
Through the tough days of this last month we know that God has been faithful. One of the hardest things for me is to continue doing the hard things everyday and not see any dramatic change in his seizures. God is asking me to trust, but I want to see results. Slowly I am learning that everyday I need Him to be my strength. I can't make it through the day with out him. We can not see the next bend in the road, but we know that He walks one step in front of us. We can feel the prayers of our friends and we are so thankful for each day that we get to spend with this precious little guy.
we are still praying for you all. "Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up." Galatians 6:9 Hang in there!
ReplyDeleteI will be praying specifically for mealtimes. I wore purple on Monday, too. Believing for more good days for Ethan.
ReplyDeleteI pray for Ethan every day and I will add mealtimes to that prayer.
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